The holidays are behind us now and my husband and i are trying to get everything back to “normal.” I’ve noticed a few changes in the boys since they were on break. Christian has started to speak more clearly and David is saying a few words here and there and making more noises/sounds. Yay!
I haven’t completely eliminated all gluten or casein from our diets, but I got rid of milk & yogurt while trying lots of different gluten free products. So far it’s not so bad. The boys won’t eat some of the food but they will try others. Its very hit and miss at this point but I’m not giving up!
I thought after having my hernia repair, that I would have more time to read a few books, apply for TACA or Generation Rescue grants, attend another coffee talk meeting and attempt to relax. This recovery has really proven otherwise – but that’s ok.
Despite the crazy schedules my husband and I have, Rick in college, the long drives to work, school for the boys, arranging daycare for my baby, applying for head start for Christian, David starting preschool, David’s ABA, Christian to start ABA soon, IEP’s, exits, assessments & IPP’s done, i still have the feeling that i’m not doing enough for the boys. I suppose by way of biomedical intervention & DAN! Dr.’s, I need to do some more research and just do it already!
I forget to stop and look at everything going on around our little house and how everyone and everything has changed these past 10 months. We’ve come quite a long way since March 15, 2011 when David (my middle son) was first diagnosed with Autism at age 2 1/2. I have to say, I never want to go back to that time.
I remember the sinking feeling, anger, hurt, mourning, denial and crying the entire way home from the Kaiser ASD Clinic in Rancho Cordova. I don’t remember much else about that few hours after that news, except that after a day or so, I began calling every place the doctors mentioned that i should call. I called Kaiser genetics, Kaiser mental health, Kaiser allergists, Central Valley Regional Center, EPU and Kings Canyon Unified School District – to start.
I don’t think I was mentally prepared for the whirlwind of people who met with Rick and I in our home. There have been appointments, meetings, assessments, therapies, thousands of questions, paperwork on top of paperwork and lots of education.
I took classes on how to be an effective parent to children with Autism – and the class was awesome!
I’ve realized that if I don’t speak for my boys, they will go unheard and unseen. It’s just something you have to do as a parent of a special needs child. I’m still somewhat stubborn, insanely busy, a mom to 3 boys under 4, working 40 hours a week, couponing like crazy, and trying to be everything that I have to be. I haven’t pulled my hair out…yet….
I guess i didn’t know I had it in me…